National Clinical Analysis and Specialised Applications Team
Use of personal information
The radiotherapy dataset (RTDS) is information about radiotherapy treatment. It includes information about the treatment you have received, including your personal information, information about the disease being treated and details about your radiotherapy. It is recorded by the radiotherapy centre where you are treated as part of your medical records, and is sent at the end of the month to The National Clinical Analysis and Specialised Applications Team (NATCANSAT).
Included in the RTDS is your NHS Number, your Date of Birth, and Postcode. You are not asked for your permission to give this information to NATCANSAT, as they have exemption under section 251 of the NHS Act 2006.
The RTDS is used to prepare statistics on the use of radiotherapy in England. These are used to measure differences in the way radiotherapy is delivered in different parts of the country, and help radiotherapy centres to give the best treatment to patients and make sure that everyone gets the treatment they need.
Your information is sent to NATCANSAT by the team involved in your radiotherapy treatment.
NATCANSAT store it securely, and never put it on a laptop or memory stick, so there is no chance of it being accidentally lost.
NATCANSAT do not need to know who you are, so for most of their analytical work, they never look at your personal details. They do use them, however, when they need to link your information to other information from a different source (for example, to the cancer registry record so that they can find out when you were diagnosed with your disease, so that they can work out how long after you had radiotherapy). They only use these details when it is absolutely necessary, and they are only allowed to use them for a very strict set of uses.
These uses of your personal data to link to other information are really important to us, and this is why we value your approval to allow use to use your data in this way. If we can’t link this information for every single patient who receives radiotherapy it limits what decisions the NHS can make using the information we provide to them.
NATCANSAT will occasionally share your personal information with other people. They will only do this if:
If you have any questions about the use of your personal information in the Radiotherapy Dataset, you can ask:
You are entitled to ask for your personal details to be excluded from RTDS. Your radiotherapy centre will still submit the details of your radiotherapy, but your NHS Number, Date of Birth and Postcode will be removed.
You should contact the PALS team at the hospital where you are receiving radiotherapy for advice on how to do this.